pre-dialysisThe Story of Holly & Billy the Kid

Chapter IV: Here we go again.

Unfortunately, I relapsed in October 2013, and quickly became well acquainted with the nephrology department of my local hospital, which, fortunately, is a large teaching centre. Back onto steroids I went, and more Rituximab was scheduled for April 2014, our thinking being that it slowed things down last time, and we might get equally lucky again.

This time it only partially worked, my kidneys continued to slowly deteriorate, and in August 2014 I was placed on the transplant list. I will never forget realising “how sick” I really was. I spent the best part of a year in and out of the suspended category due to being “slightly too healthy”, but in August 2015 I was officially activated. I could get a phone call at any time and find myself rushing to Manchester in a great hurry, ready to start the next chapter of my life.

While I waited, I was fortunate to still not be on dialysis, and I worked, travelled a bit, spent time with my parents who visited from New Zealand, and just tried to pretend I was as normal as possible. There were several occasions where I just felt “off”, or my blood tests weren’t great, or something else happened and I was sure that this was it, my streak of good luck had ended and I was going to have to start dialysis, but it just never seemed to. For a whole further 12 months, I was a bit like the Duracell Bunny, I just kept going and going…

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