Extremely Vulnerable

“We have identified that you’re someone at risk of severe illness if you catch Coronavirus.” I’ve heard and read these words so many times over the last few weeks. Logically, I understand why; I know my decreased immunity would impact my ability to recover from coronavirus if I caught it. I realise how vitally important […]

PatientView & Ostriches

When I was first diagnosed, and as I started to understand how serious my condition was, going to clinic, and having the blood tests beforehand, became a massively anxiety-inducing experience. I would absolutely dread it. Even though PatientView was an option, and I had an account, I hardly ever used it. I didn’t want to […]

Eight years, balance, & whether I’d go back.

I was diagnosed eight years ago this week. I remember sitting in the clinic with my parents and having loads of information thrown at us. At that stage there were far more questions than answers. I had absolutely no idea what most of it meant then, let alone what it would continue to mean eight […]

Gratitude & frustration: post-transplant body image

My hair and I are in a long-term love/hate relationship. For many years, I absolutely hated it. I’m adopted, so nobody else in my family had hair as curly as mine, and my parents weren’t particularly adept styling it when I was growing up, so we just kind of ignored that it was the way […]