PatientView & Ostriches

When I was first diagnosed, and as I started to understand how serious my condition was, going to clinic, and having the blood tests beforehand, became a massively anxiety-inducing experience. I would absolutely dread it. Even though PatientView was an option, and I had an account, I hardly ever used it. I didn’t want to […]

Eight years, balance, & whether I’d go back.

I was diagnosed eight years ago this week. I remember sitting in the clinic with my parents and having loads of information thrown at us. At that stage there were far more questions than answers. I had absolutely no idea what most of it meant then, let alone what it would continue to mean eight […]

2019: Worthy Achievements vs. Real Life

I need to lose some weight. I should quit smoking. I think I should drink less. I really need to exercise more. I have to get more organised. Yep. It’s here. That strange, slightly awkward, time warp-like period in between Christmas and New Year. The time when we start thinking about what we’re going to […]

demons on the boat

Anxiety, Storms & Demons on the Boat

Sometimes life is very loud. Thoughts, worries, ideas and concerns spin around and around inside my head all at the same time, jumbling together to create a mess of confusion that’s impossible to find a way through. Finding myself in the middle of this mess is often totally overwhelming. I have spent many years in […]

Gratitude & frustration: post-transplant body image

My hair and I are in a long-term love/hate relationship. For many years, I absolutely hated it. I’m adopted, so nobody else in my family had hair as curly as mine, and my parents weren’t particularly adept styling it when I was growing up, so we just kind of ignored that it was the way […]