PatientView & Ostriches

When I was first diagnosed, and as I started to understand how serious my condition was, going to clinic, and having the blood tests beforehand, became a massively anxiety-inducing experience. I would absolutely dread it. Even though PatientView was an option, and I had an account, I hardly ever used it. I didn’t want to […]

Eight years, balance, & whether I’d go back.

I was diagnosed eight years ago this week. I remember sitting in the clinic with my parents and having loads of information thrown at us. At that stage there were far more questions than answers. I had absolutely no idea what most of it meant then, let alone what it would continue to mean eight […]

Chapter IV: Here we go again.

Unfortunately, I relapsed in October 2013, and quickly became well acquainted with the nephrology department of my local hospital, which, fortunately, is a large teaching centre. Back onto steroids I went, and more Rituximab was scheduled for April 2014, our thinking being that it slowed things down last time, and we might get equally lucky […]

Chapter I: When it isn’t the flu.

On September 20th 2010, I felt sick. I was a 23 year old primary education student on a teaching placement in a classroom full of five-year-olds, so I assumed I’d caught something from one of them. Off to my GP I went for some blood tests to get a medical note to excuse me from […]